Outdated Labels Are Harmful



Hi 👋 how we doing my fellow subscribers / readers / passers-by

If you been with me since 2019 & been reading my content & things though ones experience. Thank you 😊

As you know the high / low functional labels are not clinical diagnosis & what they intend to do is not help either party of said autistic ( person(s)

High functioning – no support

Low functioning – no agency

As for me you know my battle since 2017 & the shit I went though with the care package assessment x2) the outdated terms. Calling me high functioning which deemed by them – oh your fine & you can do this & that & your dandy apparently.

Using this outdated terms high functioning i was denied support access to my community & my LA ie adult social services. I fought this up until 2019 ( hence why I decided to write a blog on ones experience)

These labels are harmful & outdated & very ableist. Its bad enough adults like me past 30s. Have no help or lack off or non existent. Your passed down to MH who are not qualified to deal with autistic folk.

Due to this label & the non help I got it impacted my mental health so bad I had to stop fighting. Its 2022 & I am still with no help or support. When my OT left me moons ago. All I got was an advice line via online). And to get this you have to introduce yourself via webcam ( its a no go)

As well as nothing for adults my age, i can’t get an advocate due to.. wait for it. I am not severe enough. Pass my sell by date , LA & Adult social services against me due to this said functioning label.

Its not just me in this boat. We are all in this together & dealing with the same shit and abhorrent ableism daily.

These labels need to be removed because people like me are not getting the support they need. And yes while most autistic adults can lead a semi norm life and hold down a job. Most of us can’t and we are not linear. For myself I was late diagnosis at 31 in 2017. I was misdiagnosed BPD. I moved here in 2011 & had to be independent but did i struggle ? Hell yes. Hello autistic all my god damn life. Only to find out in my 30s I was autistic. Great I got dual diagnosis. But after that, fight after fight and battles. With every damn authority / doctors / dwp etc. Accessibility is making a loud noise till you get heard you have a hidden disabilities . It should not be like this and still.

And folk wonder why most autistics don’t live up to 40 or have constant thoughts of ending there life or just had enough. This is what we endure no bloody motivation speech or green tea or walks etc are going to make a stance or change on our outlook. As much a I am Buddhist for a way of life. I’m still autistic & whatever I do or say is not going to change my life or any other autistics either. That is down to the LA and Adult social services & the government. These people & the psychologist etc. And these labels need to go.

Placing for myself HF is deemed harmful and saying I can do this and that is a god damn lie. It not how I work or my brain functioning. I am rigid in routine its how I function..my sensory all, is smell / touch/ taste / texture / noise ( SPD ) etc. It so complex.

Just put in Google HF see what pops up. It turn my wee irish arse raging.

Anyway sharing is caring ❤

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