Hi 👋 , hope you’re all good 👍

Where does one start 🤔 , as you know we ( me,you,us the tribe), need accessibility and communication. But we (some ) are met with ableism or they lack the communication , ie contacting us or not bothering or they just can’t be asked..or put that adjustment in place. (Long bloody list).

And here’s my wee story. So you know I was waiting for ma CT scan which I was referred to on the 29th November ( 2021). So I’m waiting worrying going out my mind thinking when is it. ( thinking the worse as you do). Also ma da had stomach cancer x2). Anyway i pluck up the mental energy to phone up radiology department. And I say I’ve been waiting for a CT scan. So the dude takes ma birthdate / name. And he tells me its been rejected. I was like why though. He was like not enough evidence etc ( he can’t explain more as it needs to come from ma doctor.

So why this was rejected I’ve been sat in the dark worrying , no one has informed me ie the hospital or the doctors that this has happened. No communication feck all. Not even a god dam letter though ma door. Knowing full well I’m autistic ( do they think I’m a mind reader ). Why did no one inform me and let me know. Both the hospital and the doctors.

So here’s me having to phone up ma ableist doctors. And I spoke to the receptionist. And I explained. I was like why why. What happened to contacting me. And it go quiet and me left in the dark. She was like I can’t tell you anymore as its for Doctor to tell me. So this was yesterday stressed antics, and now I’m waiting for him to phone me to tell me whats happened etc..feck sake.

I’m fuming at they knowing that I’m autistic they choose not to contact me or even write a letter..how bloody hard is it. Another thing why was it rejected. I’ve been in pain for 1 year now. And I have a lump / mass under ma ribs. Also they know ma da had stomach cancer x2. But there is not enough evidence. (Do they want blood from a stone). Or did the doctor not put enough information or anything. Its so feckin confusing and stressful.

I’m am going out ma head about it. Just everything I’ve put in here. I want to rip ma hair out.

The not knowing of the unknowing. Yeah just let me get ma crystal ball out and let me mind read that my CT scan was rejected..argh

All I ask to anyone in authority not in authority a normal regular human. With people who are autistic etc.. please make accessibility and communication to us. We don’t have a magic ball. A letter is also fine. Just keep us in the loop. Not in the dark because it bloody stressful and its ableist and its infuriating.

Peace & love a stressed out autistic 🖤😡