I get asked and see posts about this said subject. What I mean by the postcode lottery ( not them eejits knocking on your door in red jackets and a massive card). No this is goes by what county you in and how said council or adult social services works or chooses to provide for your said needs.
Like my said friend in Yorkshire.. she is adhd. And she has been living there 10 years. She gets support groups. She gets taxis paid for her to go to college. She even got a new flat too. And she has it made.
Not jealous but I think this said support should be everywhere. It should not go by your county. Hense forth the postcode lottery.
There is either you can have support and pay for it called contributions which I got asked to pay. Which let’s be honest I don’t own a money tree. Or you get left behind no support and your totally fucked. Also me and others.
I really hate to say this. But unless your dead or taken your life. That will be the only time you will get noticed. Ie Callie Lewis. Let down by a system. Errors were made. And this young 24 year old took her life in Cumbria. All because lack of support services. Lack of knowledge of autism and the continued errors made in Kent CC.
Yes she did join a suicide forum. But two wrongs don’t make a right. The let downs callie had. The pleas for support. Kent CC only realised when they knew callie was gone ( passed bless her ) they took notice of there mistakes. There errors and what they did wrong. To me that’s not good enough. And I dread to think what her mum is still going though. Being autistic we do have a higher suicide rate. Maybe if Kent Cc did there job and not let her off the radar maybe she would be here today. And personally I don’t want to see anyone with Asd/adhd. Be forget about and off the radar. How many more will be like callie ?.
And this is the postcode lottery world we live in. Not enough support for adults or none.
Or you get passed onto MH great but yes autism comes with MH. But when you find the MH team have no understanding of autism. Or knowledge. What is the point ?.
I was passed to a MH called the wellbeing. And they knew I took attempts on my life more than once. And guess what they suggested ?. I shit you not. Homework and writing things down. Well you know me an avid writer and honest. But I did not see the intervention on this. Heres paper write down what you feel . And your be dandy. And your never have to take an overdose ever again. Yes I found this patronising as fuck. Them knowing that I am asd. But that never came up in conversation. Or it be take these pills (anti depressants) as you know they never worked on me ( can tell why now ) being adhd .
Not that I was not grateful for this. But the lack of knowledge and understanding me as a person with autism and them being patronising cunts. To the say the least. And it was only 5 sessions. And I have been under many medical people per say. And I have talked and talked. And written shit down. But the difference is having a diagnosis of asd to not having one to be totally on own. ( at the time)
Lucky enough now I have an o.t , who is out of this world. Who explains things to me and understands me and does not patronise me. Yeah it took a good 4 years to get her. And now she don’t want to leave my side till I am actually in the right mindset etc.
And not everyone has a secret weapon like my o.t, but never got her straight away or overnight.
If your autistic. Speak up . Fight for your rights like I did. Your voice is worth more than you know. I may not have got anywhere with the fight I endured. But I glad I did something and that I never gave up or quit.
