Support / No Support



I see this one come up everytime on Twitter or group pages I am with on fb . Well as you know I was diagnosed 2017 . Still 3 years on and still fighting to get the support. Yes prior to 2018 I had a support worker but it was temp for 6 months.. even she went against me . It was like because she got me the referral to the gym . She was then trying to get me out of the routine I was in. And go to these groups which I did and absolutely hated . Why you ask ? Well the people there in that group either worked , went uni or lived at home with there folks . Yeah still felt left out ish . As for my support worker even though she only saw me for 6 months every 3 weeks she made out I could do this and that not the case. I go to the gym at 6:30 hardly any people about . I fecking detest this word high functioning . It means you don’t struggle much . And you can do a bit more than most . No and no. Yes my support worker said that. Getting back to the subject. Adult social services well I remember when I first phoned them I had to fill in one of them online forms for an assessment. Which I did. They got back to me a few weeks later . And the women on the phone was an arse . She was like you don’t look disabled and you don’t meet the criteria because you can cook and clean. Right o . Erm autism is not about looking disabled . Yes I can cook and clean but I struggle else where . Well this ensured a long debated battle . Because i wanted the funding for this local autism centre near me . I ended up getting my mp involved and corresponding to him and him to them. Come 2019 and I’m still here . On a waiting list to be assessed properly . Which should of happened when I got my first diagnosis of having autism. Yes the nhs strained but than you see people faking depression etc to get this and that done and that pisses me off too. I’ve only just managed to get a psychologist for talk therapy that took 3 years also . But that is short term also. It’s not just adults either on the spectrum its kids aswell. I am not one to give up and go no because that’s what they want . But no I still be here blue in the face fighting this battle


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